{"id":1793,"date":"2016-04-10T15:23:50","date_gmt":"2016-04-10T13:23:50","guid":{"rendered":"http:\/\/www.zivotsesyndromem.cz\/?p=1793"},"modified":"2016-04-10T15:23:50","modified_gmt":"2016-04-10T13:23:50","slug":"moznosti-rane-pece-u-deti-s-tcs-a-gs","status":"publish","type":"post","link":"https:\/\/www.zivotsesyndromem.cz\/?p=1793","title":{"rendered":"Mo\u017enosti ran\u00e9 p\u00e9\u010de u d\u011bt\u00ed s TCS a GS"},"content":{"rendered":"

Tento p\u0159\u00edsp\u011bvek je zam\u011b\u0159en\u00fd zejm\u00e9na pro rodi\u010de, kte\u0159\u00ed o\u010dek\u00e1vaj\u00ed p\u0159\u00edchod miminka nebo maj\u00ed narozen\u00e9 d\u00edt\u011b s posti\u017een\u00edm, a\u0165 u\u017e s Treacher Collins syndromem<\/a>,<\/strong> s Goldenhar syndromem<\/strong> <\/a>nebo jin\u00fdm t\u011blesn\u00fdm, ment\u00e1ln\u00edm, smyslov\u00fdm \u010di kombinovan\u00fdm posti\u017een\u00edm.<\/span><\/p>\n

\u201ePosti\u017een\u00e9 d\u00edt\u011b m\u00e1 pr\u00e1vo na zvl\u00e1\u0161tn\u00ed p\u00e9\u010di, v\u00fdchovu a profesn\u00ed p\u0159\u00edpravu, aby mohlo \u017e\u00edt pln\u00fdm a d\u016fstojn\u00fdm \u017eivotem a dos\u00e1hnout nejv\u00fd\u0161e mo\u017en\u00e9ho stupn\u011b samostatnosti a soci\u00e1ln\u00edho za\u010dlen\u011bn\u00ed.\u201c<\/em> <\/span>(\u00damluva o pr\u00e1vech d\u00edt\u011bte)<\/span><\/p>\n

Co je RAN\u00c1 P\u00c9\u010cE?
\n<\/span><\/strong>\u201eJedn\u00e1 se o soustavu slu\u017eeb a\u00a0program\u016f poskytovan\u00fdch d\u011btem ohro\u017een\u00fdm v\u00a0soci\u00e1ln\u00edm, biologick\u00e9m a psychick\u00e9m v\u00fdvoji, d\u011btem se zdravotn\u00edm posti\u017een\u00edm a jejich rodin\u00e1m s\u00a0c\u00edlem p\u0159edch\u00e1zet posti\u017een\u00ed, eliminovat nebo zm\u00edrnit jeho d\u016fsledky a poskytnout rodin\u011b, d\u00edt\u011bti i spole\u010dnosti p\u0159edpoklady soci\u00e1ln\u00ed integrace.\u201c (1)<\/span><\/p>\n

Podle Z\u00e1kona o soci\u00e1ln\u00edch slu\u017eb\u00e1ch \u010d.108\/2006 Sb<\/a>.<\/strong>\u00a0dle \u00a7 54<\/strong> je ran\u00e1 p\u00e9\u010de bezplatn\u00e1 ter\u00e9nn\u00ed slu\u017eba<\/strong>, pop\u0159\u00edpad\u011b dopln\u011bn\u00e1 ambulantn\u00ed formou slu\u017eby, poskytovan\u00e1 d\u00edt\u011bti a rodi\u010d\u016fm d\u00edt\u011bte ve v\u011bku do 7 let<\/strong>, kter\u00e9 je zdravotn\u011b posti\u017een\u00e9, nebo jeho\u017e v\u00fdvoj je ohro\u017een v\u00a0d\u016fsledku nep\u0159\u00edzniv\u00e9ho zdravotn\u00edho stavu. Slu\u017eba je zam\u011b\u0159ena na podporu rodiny a\u00a0podporu v\u00fdvoje d\u00edt\u011bte s\u00a0ohledem na jeho pot\u0159eby.\u201c.<\/span><\/p>\n

Slu\u017eba obsahuje tyto z\u00e1kladn\u00ed \u010dinnosti<\/strong>:
\n<\/span>a) v\u00fdchovn\u00e9, vzd\u011bl\u00e1vac\u00ed a aktiviza\u010dn\u00ed \u010dinnosti,
\n<\/span>b) zprost\u0159edkov\u00e1n\u00ed kontaktu se spole\u010densk\u00fdm prost\u0159ed\u00edm,
\n<\/span>c) soci\u00e1ln\u011b terapeutick\u00e9 \u010dinnosti,
\n<\/span>d) pomoc p\u0159i uplat\u0148ov\u00e1n\u00ed pr\u00e1v, opr\u00e1vn\u011bn\u00fdch z\u00e1jm\u016f a p\u0159i obstar\u00e1v\u00e1n\u00ed osobn\u00edch z\u00e1le\u017eitost\u00ed.<\/span><\/p>\n

C\u00edle RAN\u00c9 P\u00c9\u010cE:
\n<\/span><\/strong>\u21d2 p\u0159edch\u00e1zet posti\u017een\u00ed
\n<\/span>\u21d2 eliminovat nebo zm\u00edrnit jeho d\u016fsledky
\n<\/span>\u21d2 poskytnout rodin\u011b, d\u00edt\u011bti i spole\u010dnosti p\u0159edpoklady soci\u00e1ln\u00ed integrace.<\/span><\/p>\n

Slu\u017eby ran\u00e9 p\u00e9\u010de maj\u00ed b\u00fdt poskytov\u00e1ny od zji\u0161t\u011bn\u00ed rizika nebo posti\u017een\u00ed do p\u0159ijet\u00ed d\u00edt\u011bte vzd\u011bl\u00e1vac\u00ed instituc\u00ed tak, aby zvy\u0161ovaly v\u00fdvojovou \u00farove\u0148 d\u00edt\u011bte v oblastech, kter\u00e9 jsou ohro\u017eeny faktory biologick\u00fdmi, soci\u00e1ln\u00edmi a psychologick\u00fdmi.<\/span><\/p>\n

C\u00edlov\u00e9 skupiny, pro kter\u00e9 je ur\u010dena RAN\u00c1 P\u00c9\u010cE:<\/span><\/strong>
\n1) rodiny s d\u011btmi s ment\u00e1ln\u00edmi posti\u017een\u00edm<\/span>
\n2) rodiny s d\u011btmi s t\u011blesn\u00fdm posti\u017een\u00edm<\/span>
\n3) rodiny s d\u011btmi s kombinovan\u00fdm posti\u017een\u00edm (ment\u00e1ln\u00ed, t\u011blesn\u00e9 a smyslov\u00e9 posti\u017een\u00ed)<\/span>
\n4) rodiny s d\u011btmi s poruchami autistick\u00e9ho spektra<\/span>
\n5) rodiny s d\u011btmi s ohro\u017een\u00edm v\u00fdvoje ve v\u011bku 0 \u2013 7 let<\/span>
\n6) rodiny s d\u011btmi se zrakov\u00fdmi vadami<\/span>
\n7) rodiny s d\u011btmi se sluchov\u00fdm posti\u017een\u00edm<\/span><\/p>\n

PODM\u00cdNKY BEZPLATN\u00c9 RAN\u00c9 P\u00c9\u010cE
\n<\/span><\/strong>– mus\u00ed spadat do c\u00edlov\u00e9 skupiny Ran\u00e9 p\u00e9\u010de (viz v\u00fd\u0161e)
\n<\/span>– mus\u00ed spadat do \u00fazemn\u00ed p\u016fsobnosti, kde je slu\u017eba poskytov\u00e1na\u00a0<\/span>pod\u00e1n\u00ed \u017e\u00e1dosti a seps\u00e1n\u00ed smlouvy
\n– svobodn\u00e9 rozhodnut\u00ed rodi\u010d\u016f tuto slu\u017ebu u\u017e\u00edvat a aktivn\u011b se zapojovat do \u010dinnost\u00ed.<\/span><\/p>\n

S\"SPRP\"pole\u010dnost pro ranou p\u00e9\u010di (SPRP) –\u00a0www.ranapece.cz<\/a>
\n<\/strong>= nest\u00e1tn\u00ed organizace, kter\u00e1 poskytuje odborn\u00e9 slu\u017eby ran\u00e9 p\u00e9\u010de, podporu a pomoc rodin\u00e1m, ve kter\u00fdch se narodilo d\u00edt\u011b se zrakov\u00fdm nebo i s kombinovan\u00fdm posti\u017een\u00edm.<\/span><\/p>\n

M\u00edsta p\u016fsoben\u00ed:<\/span>\u00a0BRNO, \u010cESK\u00c9 BUD\u011aJOVICE, PRAHA, OLOMOUC + ZL\u00cdN, OSTRAVA<\/strong><\/span><\/p>\n

Komplexn\u00ed poradenstv\u00ed<\/span>
\n<\/span>(speci\u00e1ln\u011b pedagogick\u00e9, soci\u00e1ln\u00ed, psychologick\u00e1 podpora)
\n<\/span>– v\u00fdchovn\u00e9, vzd\u011bl\u00e1vac\u00ed a aktiviza\u010dn\u00ed \u010dinnosti: program stimulace zraku, zrakov\u00fd tr\u00e9nink, podpora v\u00fdvoje d\u00edt\u011bte s t\u011b\u017ek\u00fdm posti\u017een\u00edm..
\n<\/span>– informov\u00e1n\u00ed a vzd\u011bl\u00e1v\u00e1n\u00ed: informov\u00e1n\u00ed a vzd\u011bl\u00e1v\u00e1n\u00ed rodi\u010d\u016f\/pe\u010dovatel\u016f a zvy\u0161ov\u00e1n\u00ed jejich kompetenc\u00ed v p\u00e9\u010di o d\u00edt\u011b<\/span><\/p>\n


\n\"APRP\"Asociace pracovn\u00edk\u016f v ran\u00e9 p\u00e9\u010di, z.s. (APRP<\/strong>) – www.aprp.cz<\/a><\/strong>
\n<\/span>=\u00a0celost\u00e1tn\u00ed profesn\u00ed organizace sdru\u017euj\u00edc\u00ed poskytovatele ran\u00e9 p\u00e9\u010de.
\n<\/span>\u010cleny APRP jsou organizace hl\u00e1s\u00edc\u00ed se k dohodnut\u00e9 kvalit\u011b poskytovan\u00e9 slu\u017eby a poskytuj\u00edc\u00ed ranou p\u00e9\u010di v souladu s popsanou dobrou prax\u00ed. Vznikla v\u00a0roce 2003 z\u00a0Pracovn\u00ed skupiny pro ranou p\u00e9\u010di.<\/span><\/p>\n

K 1.10.2014 sdru\u017euje APRP celkem 20 \u010dlensk\u00fdch pracovi\u0161\u0165 s platnou garanc\u00ed kvality slu\u017eby\u00a0z \u010cech, Moravy a Slezska.<\/a><\/strong><\/span><\/span><\/p>\n

 <\/p>\n


\nRAN\u00c1 P\u00c9\u010cE pro rodiny s d\u011btmi se zrakov\u00fdmi vadami v \u010cR\"eda\"<\/span><\/span>
\nRan\u00e1 p\u00e9\u010de EDA, o.p.s. (PRAHA) – www.eda.cz
\n<\/a><\/span><\/strong>\u00a0e-mail: info@eda.cz<\/a><\/span><\/span><\/p>\n

Ji\u017e v\u00edce ne\u017e 25 let poskytuj\u00ed profesion\u00e1ln\u00ed soci\u00e1ln\u00ed slu\u017eby pro rodiny s d\u011btmi se zrakov\u00fdmi nebo kombinovan\u00fdmi vadami do 7 let v\u011bku.<\/span><\/p>\n

RAN\u00c1 P\u00c9\u010cE pro rodiny s d\u011btmi se sluchov\u00fdm posti\u017een\u00edm v \u010cR<\/span>
\n<\/span>Federace rodi\u010d\u016f a p\u0159\u00e1tel sluchov\u011b posti\u017een\u00fdch, o.s.<\/em>
\n<\/span>St\u0159edisko ran\u00e9 p\u00e9\u010de Tamtam, o.p.s. (PRAHA) –\u00a0www.detskysluch.cz<\/a><\/span><\/strong><\/p>\n