{"id":2079,"date":"2018-04-12T17:30:08","date_gmt":"2018-04-12T15:30:08","guid":{"rendered":"https:\/\/www.zivotsesyndromem.cz\/?p=2079"},"modified":"2018-04-12T17:30:08","modified_gmt":"2018-04-12T15:30:08","slug":"probehla-prvni-schuze-pro-vznik-spolku-be-tcs","status":"publish","type":"post","link":"https:\/\/www.zivotsesyndromem.cz\/?p=2079","title":{"rendered":"Prob\u011bhla prvn\u00ed sch\u016fze pro vznik spolku Be TCS"},"content":{"rendered":"<p><span style=\"font-size: 14pt;\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-2097 alignleft\" src=\"https:\/\/www.zivotsesyndromem.cz\/wp-content\/uploads\/2018\/04\/asociace-300x300.jpg\" alt=\"\" width=\"187\" height=\"187\" \/>Za\u010d\u00e1tkem dubna tohoto roku prob\u011bhla prvn\u00ed ustavuj\u00edc\u00ed sch\u016fze nov\u011b vznikaj\u00edc\u00edho pobo\u010dn\u00e9ho spolku\u00a0<strong>&#8222;Be Treacher Collins&#8220;<\/strong> v po\u010dtu 7 \u010dlen\u016f. Sch\u016fzka se uskute\u010dnila v Lan\u017ehot\u011b, kde \u017eije rodina mal\u00e9 Emmi\u010dky. Inici\u00e1torkou pro zalo\u017een\u00ed spolku je Eli\u0161ka Hladov\u00e1, maminka mal\u00e9 Beatky z \u010cesk\u00fdch Bud\u011bjovic. Spolek bude spadat pod <a href=\"http:\/\/arpzpd.cz\/\" target=\"_blank\" rel=\"noopener\"><strong>Asociace rodi\u010d\u016f a p\u0159\u00e1tel posti\u017een\u00fdch d\u011bt\u00ed v \u010cR,z.s.<br \/>\n<\/strong><\/a><\/span><\/p>\n<p><span style=\"font-size: 14pt;\">C\u00edlem spolku je zajistit lep\u0161\u00ed dostupnost a koordinaci posti\u017een\u00fdch rodin s l\u00e9ka\u0159i, s centry ran\u00e9 p\u00e9\u010de apod. Nad\u00e1le bude pokra\u010dovat osv\u011bta <a href=\"https:\/\/www.zivotsesyndromem.cz\/treacher-collins-syndrom-tcs\/\" target=\"_blank\" rel=\"noopener\"><strong>Treacher collins syndromu (TCS)<\/strong><\/a>. D\u00e1le se budou po\u0159\u00e1dat celost\u00e1tn\u00ed setk\u00e1n\u00ed rodin s TCS, kde si rodiny mohou vym\u011bnit sv\u00e9 zku\u0161enosti, radosti a strasti a navz\u00e1jem se podporovat.\u00a0<\/span><\/p>\n<p style=\"text-align: left;\"><span style=\"font-size: 14pt;\">Na facebooku vznikla nov\u00e1 str\u00e1nka\u00a0<strong><a href=\"https:\/\/www.facebook.com\/betcs.cz\/\" target=\"_blank\" rel=\"noopener\">Be Treacher-Collins, Be TCS<\/a>,<\/strong> kde budou informace o d\u011bn\u00ed spolku.<\/span><\/p>\n<p><span style=\"font-size: 14pt;\"><a href=\"https:\/\/www.zivotsesyndromem.cz\/wp-content\/uploads\/2018\/04\/ceska_asociace_pro_vzacna_onemocneni_LOGO-1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-2103 alignright\" src=\"https:\/\/www.zivotsesyndromem.cz\/wp-content\/uploads\/2018\/04\/ceska_asociace_pro_vzacna_onemocneni_LOGO-1-300x131.jpg\" alt=\"\" width=\"300\" height=\"131\" \/><\/a>Spolek bude i \u010dlenem\u00a0<strong><a href=\"http:\/\/vzacna-onemocneni.cz\/\" target=\"_blank\" rel=\"noopener\">\u010cAVO &#8211; \u010cesk\u00e1 asociace vz\u00e1cn\u00fdch onemocn\u011bn\u00ed<\/a>, <\/strong>kde jsou nap\u0159\u00edklad organizace\u00a0<a href=\"https:\/\/www.debra-cz.org\/\" target=\"_blank\" rel=\"noopener\"><strong>DEBRA \u010cR (Nemoc mot\u00fdl\u00edch k\u0159\u00eddel)<\/strong><\/a> nebo\u00a0ob\u010dansk\u00e9 sdru\u017een\u00ed\u00a0<strong><a href=\"http:\/\/atosaci.cz\/\" target=\"_blank\" rel=\"noopener\">ATOS (Tourret\u016fv syndrom)<\/a><\/strong><\/span><\/p>\n<p style=\"text-align: left;\"><span style=\"font-size: 14pt;\">Chcete se i VY st\u00e1t sou\u010d\u00e1st\u00ed &#8222;velk\u00e9 rodiny&#8220;?<\/span><br \/>\n<span style=\"font-size: 14pt;\"> Nev\u00e1hejte a kontaktujte n\u00e1s prost\u0159ednictv\u00edm<a href=\"https:\/\/www.facebook.com\/betcs.cz\/\" target=\"_blank\" rel=\"noopener\"> facebookov\u00e9 str\u00e1nky<\/a>\u00a0 nebo <a href=\"https:\/\/www.zivotsesyndromem.cz\/kontakt\/\" target=\"_blank\" rel=\"noopener\">kontaktn\u00edho formul\u00e1\u0159e<br \/>\n<\/a><a href=\"https:\/\/www.zivotsesyndromem.cz\/wp-content\/uploads\/2018\/04\/30624747_10212255331043393_8867800954368425984_n.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-2099 aligncenter\" src=\"https:\/\/www.zivotsesyndromem.cz\/wp-content\/uploads\/2018\/04\/30624747_10212255331043393_8867800954368425984_n-300x225.jpg\" alt=\"\" width=\"369\" height=\"277\" \/><\/a><\/span><\/p>\n<p style=\"text-align: center;\"><span style=\"font-size: 14pt;\">Nejmlad\u0161\u00ed &#8222;\u010dlenov\u00e9&#8220; \ud83d\ude42<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p> &#8230; <a title=\"Prob\u011bhla prvn\u00ed sch\u016fze pro vznik spolku Be TCS\" class=\"read-more\" href=\"https:\/\/www.zivotsesyndromem.cz\/?p=2079\" aria-label=\"\u010c\u00edst v\u00edce o Prob\u011bhla prvn\u00ed sch\u016fze pro vznik spolku Be TCS\">Read More<\/a><\/p>\n","protected":false},"author":2,"featured_media":2081,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"gallery","meta":{"footnotes":""},"categories":[15],"tags":[78,81],"class_list":["post-2079","post","type-post","status-publish","format-gallery","has-post-thumbnail","hentry","category-novinky","tag-syndrom","tag-treacher-collins","post_format-post-format-gallery","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-50"],"_links":{"self":[{"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=\/wp\/v2\/posts\/2079","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2079"}],"version-history":[{"count":0,"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=\/wp\/v2\/posts\/2079\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=\/"}],"wp:attachment":[{"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2079"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=2079"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.zivotsesyndromem.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=2079"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}