{"id":2143,"date":"2018-09-11T13:59:34","date_gmt":"2018-09-11T11:59:34","guid":{"rendered":"https:\/\/www.zivotsesyndromem.cz\/?p=2143"},"modified":"2018-09-11T13:59:34","modified_gmt":"2018-09-11T11:59:34","slug":"beseda-v-tamtam-v-pardubicich-zivot-nejen-se-sluchadly","status":"publish","type":"post","link":"https:\/\/www.zivotsesyndromem.cz\/?p=2143","title":{"rendered":"Beseda v Tamtam v Pardubic\u00edch – \u017divot nejen se sluchadly"},"content":{"rendered":"

P\u0159ed pr\u00e1zdninami mi p\u0159i\u0161la zaj\u00edmav\u00e1 pozv\u00e1nka z\u00a0\u00a0Centra pro d\u011btsk\u00fd sluch Tamtam, o.p.s.<\/strong><\/a> z Pardubic, zda bych necht\u011bla v\u00e9st besedu o na\u0161em syndromu a zku\u0161enostech se sluchadly.\u00a0 Podobnou besedu jsem u\u017e pl\u00e1novala p\u00e1r m\u011bs\u00edc\u016f, vlastn\u011b i let a te\u010f p\u0159i\u0161la kone\u010dn\u011b ta vhodn\u00e1 p\u0159\u00edle\u017eitost. A abych nebyla sama, pozvala jsem si moji kamar\u00e1dku Zuzku N.
\n<\/strong><\/a><\/span>Besedu jsme nazvaly „\u017dIVOT NEJEN SE SLUCHADLY“<\/strong>. K tomu jsme si p\u0159ipravily n\u00e1zornou prezentaci, kde byly hlavn\u011b na\u0161e fotky od d\u011btstv\u00ed po dosp\u011blost, p\u00e1r informac\u00ed a fotek o TCS a GS a nakonec i fotky v\u00fdvoje sluchadel od kapesn\u00edho po nejnov\u011bj\u0161\u00ed mo\u017enosti sluchadel p\u0159es kostn\u00ed veden\u00ed.\u00a0<\/span>
\nBesedy se z\u00fa\u010dastnilo n\u011bkolik maminek, kter\u00e9 m\u011bli d\u011bti se sluchov\u00fdm posti\u017een\u00edm (KI, BAHA), jeden nesly\u0161\u00edc\u00ed p\u00e1r se zdrav\u00fdmi d\u011btmi a maminka se synkem s\u00a0 TCS. Sv\u00e9 bohat\u00e9 praktick\u00e9 zku\u0161enosti s \u017eivotem s TCS n\u00e1m mohla \u0159\u00edct i pan\u00ed Hanka H. z Hradce Kr\u00e1lov\u00e9, kter\u00e1 n\u00e1s poctila svou n\u00e1v\u0161t\u011bvou.
\n<\/span>Cel\u00e1 beseda byla tlumo\u010dena do znakov\u00e9ho jazyka. Zuzka N. m\u00e1 tak\u00e9 z\u00e1klady znakov\u00e9ho jazyka, tak\u017ee jsme si ob\u010das rozum\u011bli v\u0161ichni i beze slov :).
\nNa za\u010d\u00e1tku jsme se zm\u00ednily kr\u00e1tce o na\u0161em webu a syndromech Treacher Collins<\/a><\/strong>\u00a0a Goldenhar.<\/strong><\/a> Pot\u00e9 jsme p\u0159istoupily k vlastn\u00edm na\u0161im \u017eivotn\u00edm p\u0159\u00edb\u011bh\u016fm. Nejv\u011bt\u0161\u00ed z\u00e1jem byl o \u0159e\u0161en\u00ed sluchu sluchadly (d\u0159\u00edve a dnes) a o mo\u017enostech silikonov\u00fdch epit\u00e9z.\u00a0<\/a><\/strong>Pro v\u011bt\u0161inu n\u00e1v\u0161t\u011bvn\u00edk\u016f to bylo sci-fi \ud83d\ude42
\nP\u0159\u00edjemn\u00e9 pov\u00edd\u00e1n\u00ed jsme ukon\u010dili po v\u00edce jak 2 hodin\u00e1ch. T\u011b\u0161il n\u00e1s z\u00e1jem ze stran maminek a tat\u00ednka, nebo\u0165 o dotazy nouze rozhodn\u011b nebyla.\u00a0 D\u011bkujeme za pozv\u00e1n\u00ed a za str\u00e1ven\u00fd \u010das v mil\u00e9 spole\u010dnosti.\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

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